Teen receives award for helping disabled children

A Kent schoolboy who has a rare genetic condition is set to be honoured with a national award for his efforts to improve the lives of other disabled children.

George, 15, who has spinal muscular atrophy (SMA) Type 2, has campaigned and protested alongside the SMA community to champion greater inclusion and accessibility, a campaign that has helped shape NHS decision-making.

The Tunbridge Wells teenager said: "I don't want the next generation having to fight the same battles. No good ever came from doing nothing."

He is due to pick up a Special Recognition Award at the WellChild Awards on Monday and meet Prince Harry at the event.

George, who is a keen drummer, will have a private meeting with the Duke of Sussex, the charity's patron, ahead of the award ceremony in London.

He said: "I have a list of things I want to talk [to Harry] about with regards to disability, but I'd also like to talk about music and ask if he likes any of the same bands – Imagine Dragons and The Fratellis."

SMA, a genetic condition that cause muscle weakness, means George relies on specialist equipment, daily therapies and treatment.

His mother Lucy, who nominated him, said: "He has been through more in his lifetime than any adult I know.

"He is an exceptional young man, who carries a strength, determination and resilience that would put many of us to shame.

"I don't think he realises what he has achieved, he is so humble, and he always uses his platform to speak about what others are going through."

George was chosen from hundreds of nominations from across the UK for his "extraordinary courage, determination and positivity".

He previously featured in a Bafta-winning documentary that highlighted the challenges people with disabilities face accessing places, services and opportunities.

Follow BBC Kent on Facebook, X, and on Instagram and listen to BBC Radio Kent on Sounds. Send your story ideas to southeasttoday@bbc.co.uk or WhatsApp us on 08081 002250.